ENabling VISion And Growing Expectations
Parenting typically-developing children is a tough task; parenting children with developmental disabilities takes an additional toll on parents’ physical and mental health and wellbeing. Contemporary 21st century ideas about health and disability are changing the way we think, act, and talk about childhood disability. These ideas have been ‘packaged’ into a program of 5 interactive workshops for parents whose children have recently been diagnosed with a neurodevelopmental condition.
This program, called ENVISAGE: ENabling VISion And Growing Expectations, is a series of online workshops developed in partnership by parents, clinicians and researchers across Canada and Australia. ENVISAGE aims to improve parents’ well-being and help them feel more competent, confident and empowered.
The ENVISAGE study has been built over five phases, and is currently in its fourth phase. In phases one to three, researchers and parents worked together to develop and beta-test the content of the ENVISAGE workshops. Now, the Envisage program is ready to be studied and we are entering the pilot trial. The pilot study is being conducted in Canada and Australia with parents who have children under six years of age. We will assess the program’s impact on parents’ well-being and their sense of confidence, family functioning, and empowerment.
How can I get involved?
The ENVISAGE research program is ready to be studied! At present, we are recruiting parents raising children under age 6 with neurodevelopmental disabilities to take part in the five workshops and tells us what they think.
To learn more about this study, please see our recruitment poster below and contact the research coordinator.
Participant Information Letter
Principal Investigator Dr. Peter Rosenbaum, CanChild
Co-Principal Investigator Dr. Laura Miller, Australian Catholic University
Associate Investigator Prof Christine Imms, Australian Catholic University
Associate Investigator Prof Jenny Ziviani, University of Queensland
Associate Investigator Dr. Andrea Cross, CanChild
Associate Investigator Ms. Vicki Cavalieros, Australian Catholic University
Associate Investigator Ms. Rachel Martens, CanChild
Investigator/Researcher Ms. Abha Balram, Australian Catholic University
Investigator/Researcher Dr. Kinga Pozniak, CanChild
Investigator/Researcher Ms. Monika Novak Pavlic, CanChild
Research Assistant Ms. Debbie Hughes
This research is being funded by the Canadian Institutes of Health Research ($379 000) and the American Academy for Cerebral Palsy and Developmental Medicine ($25,000).