ENabling VISion And Growing Expectations

Enrollment for ENVISAGE SP is COMING SOON!

We wish to engage with service providers (SPs) who work with children with developmental challenges, delays or disabilities and their families. Our aim is to evaluate a series of five online workshops for service providers.

See more here.

If you want to join, please contact

Debbie Hughes (Canada): envisage@mcmaster.ca 

Miriam Yates (Australia): sp.envisage@mcri.edu.au

Enrollment for ENVISAGE Families is now closed

We are looking for a parent or caregiver of a child under six years old to participate in our study that aims to assess the impact of ENVISAGE workshops on parents’ well-being and their sense of confidence, family functioning, and empowerment.

For more information, please contact

Debbie Hughes (Canada): envisage@mcmaster.ca 

Miriam Yates (Australia): sp.envisage@mcri.edu.au


Parenting typically-developing children is a tough task; parenting children with developmental disabilities takes an additional toll on parents’ physical and mental health and wellbeing. Contemporary 21st century ideas about health and disability are changing the way we think, act, and talk about childhood disability. These ideas have been ‘packaged’ into a program of 5 interactive workshops for parents whose children have recently been diagnosed with a neurodevelopmental condition.

This program, called ENVISAGE: ENabling VISions And Growing Expectations, is a series of online workshops developed in partnership by parents, clinicians and researchers across Canada and Australia. ENVISAGE aims to improve parents’ well-being and help them feel more competent, confident and empowered.

Study Progress 

The ENVISAGE study has been built over five phases, and is currently in its fourth phase. In phases one to three, researchers and parents worked together to develop and beta-test the content of the ENVISAGE workshops. Now, the Envisage program is ready to be studied and we are entering the pilot trial. The pilot study is being conducted in Canada and Australia with parents who have children under six years of age. We will assess the program’s impact on parents’ well-being and their sense of confidence, family functioning, and empowerment.

“It was a breath of fresh air for me… The best part was how it focused on what your child can do, instead of what they can’t" - Parent 

How can I get involved?

The ENVISAGE research program is ready to be studied! At present, we are recruiting parents raising children under age 6 with neurodevelopmental disabilities to take part in the five workshops and tells us what they think.

To learn more about this study, please see our recruitment poster below and contact the research coordinator.

    If you are in Canada, contact:                                Debbie Hughes: envisage@mcmaster.ca

    If you are in Australia, contact:

    Jacky Lipson: Envisage@acu.edu.au

    Participant Information Letter

    Download Participant Information Letter for Canada here.

    Download Participant Information Letter for Australia here.

    Project Team

    Principal Investigator              Dr. Peter Rosenbaum, CanChild

    Co-Principal Investigator        Dr. Laura Miller, Australian Catholic University

    Associate Investigator             Prof Christine Imms, Australian Catholic University

    Associate Investigator             Prof Jenny Ziviani, University of Queensland

    Associate Investigator             Dr. Andrea Cross, CanChild

    Associate Investigator             Ms. Vicki Cavalieros, Australian Catholic University  

    Associate Investigator              Ms. Rachel Martens, CanChild

    Investigator/Researcher          Ms. Abha Balram, Australian Catholic University

    Investigator/Researcher          Dr. Kinga Pozniak, CanChild

    Investigator/Researcher          Ms. Monika Novak Pavlic, CanChild

    Research Assistant                   Ms. Debbie Hughes


    This research is being funded by the Canadian Institutes of Health Research ($379 000) and the American Academy for Cerebral Palsy and Developmental Medicine ($25,000).

    Disability: Perception of Professionals and Parents

    In this video podcast,  Dr. Peter Rosenbaum talks about his editorial,  'You have textbooks; we have story books'. Disability as perceived by professionals and parents . The idea of this editorial came from Elizabeth Chambers, a parent who believes in the value of knowing a child or youth with disabilities beyond labels and diagnoses. "He's not found in one textbook, he is a story book. And you have to let him tell you the story and the family around you," says Elizabeth.

    Read the full editorial here