As part of the requirements for the Family Engagement in Research Certificate of Completion Program, researchers and family members were partnered together and required to create a knowledge translation (KT) tool on family engagement in research. A sample of the KT tools are provided below.
Authors: Lin Li and Carolyne Osterhues
Description: This tool provides a comprehensive conversation guide, as well as tips for communication and relationship-building between researchers and patient/family partners. This infographic and conversation guide provides advice for various stages of the conversation, sample phrases, and tips on self-awareness, trust, respect, mutual understanding, and reciprocity.
You can download Li and Osterhues’ conversation guide and infographic here.
Authors: Kinga Pozniak and Perri Tutelman
Description:This infographic provides information to family members who are interested in getting involved in child health research or who are already involved and might have some more questions about the process. The infographic addresses 5 key questions: i) How can I be involved?; ii) What are the benefits of partnering with researchers?; iii) But what if I don’t have any research training?; iv) What will I be asked to do as a research partner?; and v) Where can I learn more?
You can download Pozniak & Tutelman’s infographic here.
Authors: Linda Nguyen, Samantha Bellefeuille, and Lara Eid
Description: This infographic provides tips and strategies on how to develop partnerships and enhance engagement throughout the research process. The infographic is divided in half. On one side of the page the information is directed at researchers who would like to involve family partners in their clinical and/or biomedical research project. The other side is directed to families who are interested in getting involved in either clinical or biomedical research.
You can download Nguyen, Bellefeuille & Eid’s infographic here.
Authors: Samantha Micsinszki and Alifa Khan
Description: This resource provides information for families and researchers on how to have solution-focused conversations in research partnerships. This tool is intended to provide strength-based, solution-focused prompts to frame conversations and to be used as a guide for families and researchers throughout the research process.
You can download Micsinszki & Khan’s infographic here.
Authors: Crystal Shannon and Kirsti Mardell
Description: This infographic highlights the need for family engagement in child health research. The infographic provides a definition of family engagement in research and then outlines the reasons for researchers and benefits for families.
You can download Shannon & Mardell’s infographic here.
Authors: Francine Buchanan and Ayesha Siddiqua
Description: This infographic provides a quick reference guide to authentic partnership in research, highlighting principles, values, and best practice. The authors developed the acronym ‘IMPACT’ to summarize principles and values including Inclusivity, Mutual respect, Partnership, Accountability, Co-learning, and Transparency.
You can download Buchanan & Siddiqua’s infographic here.
Authors: Sharon Gabison and Malvina Skorska
Description: This infographic provides a visual pathway for researchers to showcase the process of engaging patients, families, caregivers and/or community members (PFCC) as partners throughout each stage of the research process. The authors also developed a complementary checklist and planning guide to be used in collaboration with this infographic to optimize knowledge uptake and understanding of how to establish a research partnership throughout each stage of the research process.
Authors: Heather Shearer and Kristina McGuire
Description: Infographic 1 provides a checklist for patient partners in research and highlights key questions parents should ask at each stage of the research project. Infographic 2 explores patient partners’ roles in each stage of the research process.
Authors: Ara Healey and Maryann Post
Description: We all play important roles at different stages of a research project and are equally important to the success of the team. This video looks at re-defining roles in research and its impact on both the team and the research project.
Authors: Mindy Silva and Jen Appelton
Description: This video explores the true meaning of family engagement in research, and what it looks like in practice from the initial conception to the final results/knowledge dissemination. Useful resources to support family engagement in research are highlighted throughout the video.
Authors: Danijela Grahovac, Vivian Lee, and Sara Izadi-Najafabadi
Description: This video - Day in the Life of Parent Researcher: An Interview, is an interview with Danijela Grahovac, a parent researcher with CanChild and mother to a teenager with Cerebral Palsy. This interview provides real-life examples and information about Danijela’s experiences as a parent researcher and why and how other parents can consider becoming engaged in child health research.
Authors: Karen van Meeteren and Kaitlyn McLachlan
Description: This is a brief 3-minute informational video introducing what family engagement in research is and why it is important. This video is easy to share over social media to help spread the word about the importance of family engagement.