Course News


Throughout the year, the Family Engagement in Research (FER) newsletters are sent to FER students and graduates, family partners, and researchers. Newsletters include featured FER Grads’ accomplishments and knowledge translation tools, opportunities for engagement (e.g., webinars, conferences, employment, etc.), and publications related to family and patient engagement in research. We encourage anyone who is interested in receiving the newsletter to sign up.


Do you have news or stories to share for the next issues of the FER newsletter? Tell us about it at


News Articles

Donna Thomson shared her experience as a parent partner in disability health research in a KBHN article titled, "Using Your Lived Experience to Influence Health Research" (January 9, 2020).

KBHN published an article on the course and the importance of family engagement in research titled, "A parent graduate of the course Training Families and Researchers to Build Better Research Together" (April 18, 2019)

Rachel Martens shared her perspectives and experiences representing Kids Brain HealthNetwork and CHILD-BRIGHT at the United Nations in New York in an article titled, "Sharing a Perspective Only a Mother Can Bring to the UN CRPD" (August 16, 2018)

Caitlin Young, KBHN Communications Assistant, and Bethany Becker, Communications Manager wrote an article on Parent Participation in Research titled, “Adding Experience to Expertise – How Parents can Impact the Relevance of Research” (July 26, 2018)