Family Research Rounds Videos
Youth Telling Their Stories in Research
In this session, Sam Noyek shared the self-expressed stories of non-speaking youth. Sam is a Ph.D. Candidate at Queen's University in Rehabilitation Science. Her research explores patient-reported outcome measures for medically complex children.
Parenting a Child with a Rare Condition
Genevieve Currie is a nurse, educator, researcher, and most importantly, a parent. In this session, she shared research and stories about parenting a child with a rare condition.
Sleep Issues in Children with Neurodevelopmental Challenges
Dr. Penny Corkum discussed sleep issues in children with neurodevelopmental challenges as well as the Better Nights Better Days study.
This session explored the challenges and opportunities with Family-Researcher Partnerships.
The second session about Family Well-being features the ENabling VISions And Growing Expectations (ENVISAGE) Research Team in Australia. They shared their experiences with developing a virtual workshop that aims to improve parents’ well-being and help them feel more competent, confident and empowered.
For the first research rounds, the ENabling VISions And Growing Expectations (ENVISAGE) team shared their experiences with developing a virtual workshop for caregivers who are new to the experience of childhood disability.