Helpful tip sheets written by parents who have children with Cerebral Palsy for parents.
The “I Want to Participate In…” series of Tip Sheets provide examples of a wide range of leisure activities and are designed for use by children and young adults.
Jan Willem Gorter sums up the groundbreaking "F-words" paper in 30 seconds in a video produced by the Cerebral Palsy Foundation.
The Participation and Environment Measure for Children and Youth, or the PEM-CY, is a new measurement tool designed to help parents, service providers and researchers better understand the participation of children and youth, ages 5 to 17.
These Tip Sheets apply to children and youth of all abilities and were designed with input from parents, occupational therapists and representatives from community organizations to cover a variety of participation topics.
This report focuses on what parents told us about their families at the 2nd session (a telephone interview). We asked about many different things, for example: family activities, the supports that families have in caring for their children, and the home environment.
Assistance to Participate Scale (APS), Child's Challenging Behavior Scale (CCBS), Canadian Occupational Performance Measure (COPM), Daily Activities of Infants Scale (DAIS), Focus on the Outcomes of Communication Under Six (FOCUS), Health Promoting Activities Scale (HPAS), Spinal Alignment and Range of Motion Measure (SAROMM).
The PARTICIPATE study has been designed to examine the participation of children with physical disabilities in formal and informal everyday activities.
The APS is a brief, psychometrically sound instrument that measures the assistance that a school-aged child with a disability requires to participate in play and leisure activities at home or in the community, from the primary caregiver's perspective.
This report focuses on what parents told us about the health conditions their children have, and how these conditions affected their daily lives. When we say “health”, we mean all the different functions of the whole body.
Encouraging Participation In Physical Activities For Children With Developmental Coordination Disorder
Parents of children with DCD are often confused and worried about their child’s lack of interest in physical activity. Parents, teachers and coaches may mistakenly label these children as lazy and unmotivated.
The International Classification of Functioning, Disability, and Health (ICF): A Global Model to Guide Clinical Thinking and Practice in Childhood Disability
The International Classification of Functioning, Disability and Health (ICF) (WHO, 2001) is a classification system developed by the World Health Organization that focuses on the 'components of health'.
In this Keeping Current, we explore the impact of the environment on the participation of children and youth who are living with a disability.
Based on "The 'F-words' in Childhood Disability: I swear this is how we should think!" (© CanChild 2012) Created by Instituto Nossa Casa (Brazil) . English version produced by CP-NET with support from the Ontario Brain Institute.
What helps adolescents with cerebral palsy to be physically active? Developing a program to support youth based on focus groups.
In this communication we want to share our study protocol as part of a program to support physical activity for youth with cerebral palsy (CP) using a focus group methodology.
This current In Brief includes more details about what we learned from parents about their child’s participation and the impact of the environment on participation.
The Child and Adolescent Scale of Environment (CASE) measures the perceived impact of problems experienced with physical, social and attitudinal environment features of the child’s home, school and community.
Parent Needs and Strategies for Promoting Child Participation: What We Learned from Developing the Participation and Environment Measure for Children and Youth (PEM-CY)
This In Brief focuses on feedback from parents regarding the Participation and Environment Measure for Children and Youth (PEM-CY).
A conceptual model is a diagram that shows different factors that we think may have an effect on a variety of outcomes, such as motor abilities, self-care abilities, and participation in play.
The Move & PLAY team developed a new, even shorter method of using the GMFM: the GMFM-66 B&C. It uses a “basal and ceiling” approach; child is assessed using items that range between the easiest and most difficult levels of his or her abilities; accurate scores can be obtained using as few as 15 items
The Impact of Environmental Setting on the Mobility of Children with Cerebral Palsy: Research Findings and Clinical Implications
Gross motor function of children with CP is highly variable. Children who are able to walk vary in their speed, endurance, and need for assistive devices.
Enhancing Fitness, Adaptive Motor Function, and Participation of Children with Cerebral Palsy Classified in Levels IV and V
This report will address adaptive motor function of children with cerebral palsy. Adaptive motor function enables performance of activities in daily life despite limitations in motor control of posture and movement.
Determining Physical Activity Levels and Cardiovascular Health in Adults with Cerebral Palsy (Stay-FIT 20-40 years study)
In the Stay-FIT pilot study, it was determined that the physical activity level of adolescents with CP (mean age 13.5 years) was lower than that of their healthy peers. However, the vessel health was not statistically different.
The Child and Adolescent Scale of Participation (CASP) measures the extent to which children participate in home, school, and community activities as reported by family caregivers.
This current In Brief includes more details about what we did to evaluate whether the PEM-CY provides consistent information about participation and actually measures what we want it to measure.
The International Classification of Functioning, Disability, and Health (ICF): There is Always More Than a Single Story*
The ICF helps clinicians and families think about a broader and fuller picture of both the specific health information and the life situation of a patient.
This report focuses on what parents told us about the recreation and rehabilitation services their children received. We collected information about various aspects of these services at the 2nd session, using a parent questionnaire developed by the research team.
The purpose of the Move & PLAY study was to gain a better understanding of the child, family, and service delivery factors that support the development of movement abilities and participation in self-care, recreation, and play of preschool children with cerebral palsy (CP).
The YC-PEM is designed to help parents, service providers and researchers better understand the participation of young children with and without disabilities ages 0 to 5 years.
Bringing the 'F-Words' to Life: How are families and service providers using the 'F-words' in practice?
A CP-NET webinar highlighting 'F-word' in Childhood Disability resources and strategies for implementing the concept at home and in clinical practice.
The Children's Assessment of Participation and Enjoyment (CAPE) and the Preferences for Activities of Children (PAC) are two companion measures of children's participation.
There are 2 summaries in this series describing the results of the main goal of the Move & PLAY study: to determine which child, family, and service factors influence children’s motor, self-care, and play abilities.
Development and Testing of a Resource Manual for Parents of Young Adults Who Receive Individualized Funding for Support
The goal of this project is to develop a Resource Manual that can be broadly circulated to families who receive individualized funding.
The Child and Adolescent Factors Inventory (CAFI) is an inventory of problems in physical, cognitive and psychosocial functioning and other symptoms encountered by children with acquired brain injuries as well as other childhood disabilities.
Patterns and Predictors of Recreational and Leisure Participation for Children with Physical Disabilities
For children and youth, involvement in life situations includes participation in recreational and leisure activities as well as school and work activities.
The Participation and Environment Measure for Children and Youth (PEM-CY): An innovative measure for home, school and community
The Participation and Environment Measure for Children and Youth, or the PEM-CY, is a new measurement tool designed to help parents, service providers and researchers better understand the participation of children and youth.