Sibling Resources

The SibYAC had an opportunity to collaborate with the National Youth Advisory Panel (NYAP) at the CHILD-BRIGHT Network to co-facilitate a webinar on youth and young adult engagement in patient-oriented research. The NYAP and SibYAC worked together to create an updated tip sheet listing 10 important considerations for principal investigators, researchers, and project team members to keep in mind when engaging youth and young adults as patient-partners or sibling partners in their projects. Here is the tip sheet for what the members of NYAP and SibYAC recommend.


The Art of Sibling Science

Jessica Havens, a SibYAC member, shares about what it means to be a sibling of siblings with a chronic health condition.