Participation and Environment Measure for Children and Youth (PEM-CY)

Overview

The Participation and Environment Measure for Children and Youth, or the PEM-CY, is a new measurement tool designed to help parents, service providers and researchers better understand the participation of children and youth, ages 5 to 17. The PEM-CY is a parent-report measure that asks about participation in the home, school and community, along with environmental factors within each of these settings. The PEM-CY is innovative because it is the first measure of this type that assesses participation and environmental factors at the same time.

To learn more about the PEM-CY, why and how we developed it, and the potential benefits of using the PEM-CY, please click here to view our In Brief on the topic.

Participation In-Brief

How Parents View Their Child’s Participation and Environment: Creating a Foundation for the PEM-CY. IN BRIEF © GARY BEDELL, MARY KHETANI, MARTHA COUSINS, WENDY COSTER, AND MARY LAW, 2013

An Evaluation of the Participation and Environment Measure for Children and Youth (PEM-CY). IN BRIEF © WENDY COSTER, MARY LAW, GARY BEDELL, MARY KHETANI, DANA ANABY, AND RACHEL TEPLICKY 2013

Parent Needs and Strategies for Promoting Child Participation: What We Learned from Developing the Participation and Environment Measure for Children and Youth (PEM-CY). IN BRIEF © JACQUELINE BRESNAHAN, ABIGAIL HAMILTON, SHAWNA HOLLEBONE, HAJNALKA LAKATOS, LAURA MEMOLE, GARY BEDELL, WENDY COSTER, AND MARY LAW, 2013

Child and youth participation in leisure activities: Does the environment make a difference? KEEPING CURRENT © DANA ANABY, MARY LAW, AND RACHEL TEPLICKY, 2013

Patterns and Predictors of Recreational and Leisure Participation for Children with Physical Disabilities. KEEPING CURRENT. ©LAW, M., KING, G., KING, S., KERTOY, M., HURLEY, P., ROSENBAUM, P., YOUNG, N., HANNA, S., & PETRENCHIK, T., 2006

Articles

Anaby, D., Law, M., Bedell, G., Khetani, M., Avery, L., & Teplicky, R. (2014). The mediating role of the environment in explaining participation of children and youth with and without disabilities across home, school and community. Archives of Physical Medicine and Rehabilitation, 95, 908-917. Abstract

Coster, W., Law, M., Bedell, G., Liljenquist, K., Kao, Y.C., Khetani, M., Teplicky, R. (2013). School participation, supports and barriers of students with and without disabilities. Child: Care, Health and Development, 39(4), 535-43. Abstract

Bedell, G., Coster, W., Law, M., Liljenquist, K., Kao, Y.-C., Teplicky, R., Anaby, D., & Khetani, M. (2013). Community participation and environmental supports and barriers of school age children with and without disabilities. Archives of Physical Medicine and Rehabilitation, 94(2), 315-323. Abstract

Law, M., Anaby, D., Teplicky, R., Khetani, M., Coster, W., & Bedell, G. (2013). Participation in the home environment among children and youth with and without disabilities. British Journal of Occupational Therapy, 76(2), 58-66. Abstract

Coster, W., Law, M., Bedell, G., Khetani, M.A., Cousins, M., & Teplicky, R. (2012). Development of the Participation and Environment Measure for Children and Youth: Conceptual basis. Disability and Rehabilitation, 34(3), 238-46. Abstract

Coster, W. J., Bedell, G., Law, M., Khetani, M. A., Teplicky, R., Liljenquist, K., Gleason, K., & Kao, Y. (2011). Psychometric evaluation of the Participation and Environment Measure for Children and Youth (PEM-CY). Developmental Medicine and Child Neurology, 53(11), 1030-7. Abstract

Bedell, G. M., Khetani, M. A., Cousins, M., Coster, W. J., & Law, M. (2011). Parent perspectives to inform development of measures of children's participation and environment. Archives of Physical Medicine and Rehabilitation, 92, 765-773. Abstract

Translations

The PEM-CY has been translated into the following languages:

Arabic

Dutch

French

German

Hebrew

Icelandic

Italian

Korean

Portuguese

Serbian

Spanish

Turkish

Traditional Chinese

English adaptation for Singapore

Translations are currently underway for:

Croatian

Persian

Slovene

English adaptation for the United Kingdom

If you are interested in using the PEM-CY in any of these language or are interested in translating the PEM-CY into another language, please contact Rachel Teplicky

Parent Version

The PEM-CY is now available in an electronic version that can be downloaded and completed on a personal computer. This version is for use by individual parents or caregivers. After the parent or caregiver completes the electronic PEM-CY, a Participation Profile will be created for the child. The Participation Profile can be saved and shared with others who are interested in the child's participation, such as service providers and teachers.

In order to print the Participation Profiles, your computer must have a PDF reader installed. You can download a free PDF reader from Adobe here.

Windows System Requirements:

Windows XP SP3, Windows Vista with Service Pack 2, Windows 7 or Windows 8 Classic
2.33 GHz or faster processor or Intel Atom 1.6GHz for netbooks
512 MB of RAM (1GB recommended)

To install, please double click the downloaded file. To run the PEM-CY tool for Windows, please double click the PEM-CY icon on your Desktop, or by opening your Start Menu, and locating the PEM-CY tool icon.

Note: You may receive a security warning that this software is from an untrusted publisher. We are working with our service provider to remove this warning. Please follow instructions below to disregard security warnings that may appear when downloading on a Windows computer:

Internet Explorer:

If using IE to download the PEM-CY, and you see a security scan error, please do the following:

When your download has completed, and you are seeing the red bar, please click the 'Actions' button
In the next screen, click 'More Options', and then click 'Run Anyway'

Google Chrome:

Once your download has completed, and there is a security warning/error, please do the following:

Where it says 'Discard', there is a small arrow, please click that to show more options
Click 'Keep', and then run the file as usual (proceed to where it has been downloaded, or double click your downloaded file from Google Chrome).

Mac OS System Requirements:

Intel Core Duo 1.83GHz or faster processor
Mac OS X v10.6, 10.7 or v10.8
512 MB of RAM (1GB recommended)

To install please drag the PEM-CY icon to the Applications folder, as you would normally do to install a Mac program. To run the PEM-CY tool for Mac OS, please open your Applications folder, and click on the PEM-CY icon.

Note: You may receive a security warning that this software is from an untrusted publisher. We are working with our service provider to remove this warning.

Download PEM-CY for Windows & Mac OS

In order to download the software, you must agree to the following license agreement:

PEM-CY Parent Software Licence:

Participation and Environment Measure for Children and Youth (PEM-CY) SOFTWARE LICENCE

IMPORTANT - PLEASE READ CAREFULLY: This software licence (“Licence”) is a legally binding agreement between you, the user of the Participation and Environment Measure for Children and Youth Parent Measure, (“You”) and McMaster University (“McMaster”) for Participation and Environment Measure for Children and Youth Parent Measure (“PEM-CY”).

IF YOU AGREE TO BE BOUND BY THE TERMS OF THIS LICENCE, CLICK THE ‘I ACCEPT’ BOX AT THE BOTTOM OF THIS AGREEMENT. IF YOU DO NOT AGREE TO THE TERMS OF THIS LICENCE, YOU ARE NOT AUTHORIZED TO USE THE SOFTWARE AND MUST NOT INSTALL, COPY, OR USE THE SOFTWARE. BY DOWNLOADING, INSTALLING AND/OR USING THE SOFTWARE, YOU INDICATE THE YOU AGREE TO BE BOUND BY THE TERMS OF THIS LICENCE.

TERMS OF USE

1. PARTIES

This is an agreement between McMaster and You personally. By agreeing to the terms of this Licence, You indicate that You agree to be bound by the terms of this Licence and You represent and warrant that You have the legal authority to enter into this Licence.

2. PRODUCT

This Licence is for PEM-CY Parent Software, (the “Software”).

3. OWNERSHIP OF SOFTWARE

You acknowledge that McMaster owns all right, title and interest in the copyright and all other intellectual property rights in the Software. McMaster does not grant You any ownership interest in the Software and only licenses You to use the Software in accordance with the terms of this Licence. No rights, title or interest in or to any official mark, trade-mark, service mark, logo or trade name of McMaster is granted to You under this Licence.

4. AUTHORIZED USES

Provided You comply with all the terms and conditions of this Licence, McMaster grants You a non-exclusive, non-transferable, license for use of the Software for academic, research, and clinical purposes only (“Permitted Purposes”). McMaster grants You permission to store and use the Software on multiple computers and or networks for individuals defined under Authorized Users for the Permitted Purpose only.

5. AUTHORIZED USERS

“Authorized Users" include You, persons affiliated with You, employees, students (including faculty, staff, affiliated researchers and independent contractors) You and the institution of which it is a part, regardless of the physical location of such persons.

6. PROHIBITED USES

You must not:

1. sell, sublicense, modify, adapt, rent, loan, reverse engineer or otherwise distribute copies of the Software;

2. include the Software as a component of a commercial product (any such use requires McMaster’s prior written consent)

3. publicly perform or display the Software, including making the Software available for download to anyone else on any computer system or network; and

4. remove or obscure any copyright, trade-mark or other proprietary notices from the Software.

7. DISCLAIMER OF WARRANTIES

The Software has been developed as part of research conducted at McMaster and is experimental in nature. MCMASTER IS PROVIDING YOU WITH THE SOFTWARE “AS IS” WITH ALL FAULTS AND WITHOUT WARRANTY OF ANY KIND, EITHER EXPRESS OR IMPLIED.

MCMASTER EXPRESSLY DISCLAIMS AND EXCLUDES ALL WARRANTIES AND REPRESENTATIONS, EXPRESS OR IMPLIED, INCLUDING, BUT NOT LIMITED TO, ANY IMPLIED WARRANTIES THAT THE SOFTWARE IS MERCHANTABLE, ACCURATE OR FIT FOR A PARTICULAR PURPOSE. MCMASTER DOES NOT WARRANT THAT THE SOFTWARE WILL MEET YOUR REQUIREMENTS OR THAT USE OF THE SOFTWARE WILL PRODUCE A DESIRED RESULT, OR THAT THE SOFTWARE WILL OPERATE UNINTERRUPTED, OR ERROR FREE, OR THAT ANY DEFECTS IN THE SOFTWARE WILL BE CORRECTED. MCMASTER DOES NOT WARRANT THAT THE USE OF THE SOFTWARE WILL NOT INFRINGE ANY PATENT, COPYRIGHT, TRADE-MARK OR OTHER RIGHTS.

MCMASTER DOES NOT WARRANT OR ASSUME RESPONSIBILITY FOR THE ACCURACY OR COMPLETENESS OF ANY INFORMATION, TEXT, GRAPHICS, LINKS OR OTHER ITEMS CONTAINED WITHIN THE SOFTWARE

8. ASSUMPTION OF RISK

YOU ASSUME ALL RISK AND RESPONSIBILITY FOR THE SELECTION, INSTALLATION, USE, QUALITY, PERFORMANCE, AND RESULTS OBTAINED FROM THE SOFTWARE.

9. LIMITATION OF LIABILITY

IN NO EVENT WILL MCMASTER BE LIABLE TO YOU OR ANY OTHER PERSON OR ENTITY, FOR ANY DAMAGES OF ANY KIND, INCLUDING LOST PROFITS, DATA, BUSINESS INTERRUPTION OR SPECIAL, INCIDENTAL OR CONSEQUENTIAL DAMAGES, IN ANY WAY ARISING OUT OF OR IN CONNECTION WITH THE SOFTWARE, ITS USE OR PERFORMANCE, OR THIS LICENCE, EVEN IF MCMASTER HAS BEEN ADVISED OF THE POSSIBILITY OF SUCH DAMAGES.

10. INDEMNITY

IN CONSIDERATION FOR THE BENEFITS OBTAINED UNDER THIS LICENCE, YOU WILL INDEMNIFY AND HOLD HARMLESS MCMASTER AGAINST ANY CLAIMS, LIABILITY, LOSS, DAMAGE, COSTS OR EXPENSES, INCLUDING REASONABLE LEGAL COSTS, RESULTING FROM YOUR POSSESSION AND OR USE OF THE SOFTWARE.

11. THIRD PARTY RIGHTS

THE SOFTWARE MAY BE DEPENDENT ON PROGRAMS, OPERATING SYSTEMS OR OTHER INTELLECTUAL PROPERTY OF THIRD PARTIES WHICH MAY REQUIRE THIRD PARTY LICENCES. COMPLIANCE TO TERMS AND PAYMENT OF FEES ASSOCIATED WITH THESE THIRD PARTY LICENCES ARE THE SOLE RESPONSIBILITY OF YOU AND ARE NOT INCLUDED IN THIS LICENCE.

12. NO SUPPORT UNDER THIS LICENSE AGREEMENT.

MCMASTER HAS NO OBLIGATION TO PROVIDE SUPPORT OR MAINTENANCE FOR THE SOFTWARE UNDER THIS AGREEMENT. HOWEVER, MCMASTER MAY, AT ITS SOLE DISCRETION, PROVIDE LIMITED TECHNICAL SUPPORT, UPGRADES, AND UPDATES. IF MCMASTER IN ITS SOLE DISCRETION PROVIDES YOU WITH ANY SUPPORT SERVICES FOR THE SOFTWARE, SUCH MATERIAL SHALL BE DEEMED INCLUDED AS PART OF THE SOFTWARE, AND IN ANY EVENT GOVERNED BY THIS AGREEMENT UNLESS OTHER TERMS OF USE ARE PROVIDED BY MCMASTER WITH SUCH SUPPORT SERVICES.

13. TERM AND TERMINATION

This Licence commences on the date the Software is electronically or physically delivered to You and continues in effect unless it is terminated earlier by McMaster. It may be terminated by McMaster immediately without notice if You fail to comply with any of the terms and conditions of this Licence. Upon termination of this Licence, Your rights to use the Software terminate.

14. REPRESENTATION OF AUTHORITY

You represent and warrant that you possess the legal authority to enter into this Licence and that You will be financially responsible for Your use of the Software. You are responsible for supplying any hardware or Software necessary to use the Software.

16. NO ASSIGNMENT

You must not assign, sublicense or otherwise transfer this Licence or any rights granted by this Licence without the prior written consent of McMaster and any attempt to do so without the consent of McMaster will be void.

17. FORCE MAJEURE

Neither party to this Licence will be liable for delay or failure to perform their respective obligations this Licence if such delay or failure arises from any cause beyond the reasonable control of the party (‘Force Majeure’) provided such party gives the other party written notice of the Force Majeure. Force Majeure includes, without limitation: labour disputes, strikes, other labour or industrial disturbances and any act of God, fire, natural disaster, power failures, accidents, act of government, shortages of materials or supplies and failure of contractors to perform. If a party is temporarily excused from performing its obligations under this Licence because of Force Majeure, it must promptly resume performance when such Force Majeure is cured or removed.

18. COMPLETE AGREEMENT

This Licence contains the entire agreement between You and McMaster relating to the Software, and supersedes any prior understandings, arrangements, commitments, communications or agreements, oral or written, between You and McMaster with respect to the Software. No amendments or modifications to this Licence are effective unless in writing and signed by both parties. You should print out or download a copy of this Licence and retain it for Your records.

19. SEVERABILITY

If any provision of this Licence becomes void, invalid, illegal or unenforceable, the remaining provisions will not be affected and will continue in effect as though the unenforceable provision(s) were deleted.

20. WAIVER

If either party omits or delays to require the other party to punctually fulfill any of its obligations under this Licence, this omission or delay will not operate as a waiver by that party of its rights under this Agreement.

21. SURVIVAL

Clauses 3 (Ownership), 7 (Disclaimer of Warranties), 8 (Assumption of Risk), 9 (Limitation of Liability), 10 (Indemnity), 13 (Acknowledgment of McMaster), and 16 – 24 (General provisions) survive termination of this Licence.

22. REVERSE ENGINEERING

You may not reverse-assemble, reverse-compile, or otherwise reverse-engineer any Software provided.

23. GOVERNING LAW

This Agreement will be interpreted in accordance with the laws of the Province of Ontario, Canada. Any suit, action, or proceeding arising out of or relating to this Licence must be brought in Toronto, Ontario and You submit to the exclusive jurisdiction of the Courts of Toronto, Ontario. Use of this Software is prohibited in any jurisdiction which does not give effect to the terms of this Licence.

24. NOTICE OF COLLECTION OF PERSONAL INFORMATION

The information gathered is collected under the authority of The McMaster University Act, 1976. The information will be used only for the purpose of providing users of the Software with information related to any Software upgrades. Information provided on this form will not be used for any unrelated purpose. This information is protected and is being collected pursuant to section 39(2) and section 42 of the Freedom of Information and Protection of Privacy Act of Ontario (RSO 1990). If you have any questions or concerns about the collection or use of your personal information in relation to this form, please contact CanChild - Centre for Childhood Disability Research

I have read and understood the above agreement and agree to be bound by the terms and conditions of this agreement.

Purchase

The PEM-CY is now available for license:

Shop CanChild

The purchased version is available as a PDF and includes a user's guide, scoring recommendations, as well as comparative data for children with and without disabilities. Purchasing a single-licensed copy allows a service provider to make unlimited copies of the PEM-CY. Licenses are also available for organizations.

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