Publications and Presentations
Selected Presentations & Posters
Demonstration Poster Presented at American Academy for Cerebral Palsy and Developmental Medicine (AACPDM) Conference in Milwaukee, Wisconsin, USA (October 2013) and Ontario Association of Children's Rehabilitation Services (OACRS) Conference, Toronto, ON, CANADA (November 2013):
Developmental Trajectories of Children With Cerebral Palsy: The 'On Track' Study
Doreen Bartlett, PT/PhD; Sarah McCoy, PT PhD; Lisa Chiarello, PT PhD; Robert Palisano, PT ScD; Lynn Jeffries, PT PhD; Alyssa LaForme Fiss, PT PhD; Steven Hanna, PhD; Jan Willem Gorter, MD PhD
Demonstration Poster Presented at Section on Pediatrics of the American Physical Therapy Association (SoPAC) Conference in St. Louis, Missouri, USA (October 2014):
Activity Capacity & Performance, Participation, and The Environment of Children With Cerebral Palsy
Cheryl Kerfeld, Kristie Bjornson, Erin Wentz, Nancy Cicirello, Alyssa Fiss
Poster Presented at the Combined Sections Meeting of the American Physical Therapy Association, Indianapolis, USA (February 2015). Also presented at Western University's Faculty of Health Sciences Research Day, London, ON, CANADA (March 2015) and Child Health Research Symposium, London, ON, CANADA (May 2015):
Moving From 'Consultant' To 'Collaborator': One Pediatric Research Team's Experience
Bartlett D, Chiarello L, Hjorngaard T, Sieck Taylor B, Palisano R
Poster Presented at Western University's Faculty of Health Sciences Research Day, London ON, CANADA (March 2015) and Child Health Research Symposium, London, ON, CANADA (May 2015) and Ontario Association of Children's Rehabilitation Services (OACRS) Conference, Toronto, ON, CANADA (Nov 2015):
Natalie Scime, Doreen Bartlett, Laura Brunton, Robert Palisano
Poster Presented at Child Health Research Symposium, London, ON, CANADA (May 2015):
Jeevanantham, Deepa MPT; Bartlett, Doreen PT, PhD
Instructional Course presentation at the American Academy for Cerebral Palsy and Developmental Medicine (AACPDM) in Austin, Texas, USA in Oct 2015.
Family-Researcher Collaboration: Bringing the Family’s Voice to Research
Robert Palisano, Lisa Chiarello, Barbara Taylor, Tina Hjorngaard
Presentation at Division of Early Childhood (DEC): 31st Annual International Conference on Young Children with Special Needs and Their Families in Atlanta, Georgia, USA in Oct 2015:
Family Researcher Collaboration: Bringing the Family’s Voice to Research
Alyssa Fiss, Lynn Jeffries, Nancy Ford
Presentation at the Combined Sections Meeting of the American Physical Therapy Association (APTA) in Anaheim, California, USA in February 2016:
Characterization of Therapy Services for Children with Cerebral Palsy
Robert Palisano, Sarah McCoy, Doreen Bartlett, Lisa Chiarello
Poster Presented at Combined Sections Meeting (CSM), American Physical Therapy Association (APTA), in Anaheim, California, USA in February 2016.
Understanding participation of children with cerebral palsy in family and recreational activities
Mohammed Alghamdi, Lisa Chiarello, Robert Palisano, Sarah McCoy
Presentation at Combined Sections Meeting (CSM), American Physical Therapy Association (APTA), in Anaheim, California, USA in February 2016.
Cross-sectional comparison of impairments in young and older children with cerebral palsy
Lynn Jeffries, Alyssa LaForme Fiss, Sally Westcott McCoy
Poster Presented at Combined Sections Meeting (CSM), American Physical Therapy Association (APTA), in Anaheim, California, USA in February 2016.
Alyssa Fiss, Kristie Bjornson, Erin Wentz, Cheryl Kerfeld
Poster Presented at Combined Sections Meeting (CSM), American Physical Therapy Association (APTA), in Anaheim, California, USA in February 2016.
Cheryl Kerfeld, Phil Hurvitz, Kristie Bjornson
Mini-symposium presentation at 5th International Conference of Cerebral Palsy (ICPC) Stockholm, Sweden in June 2016.
Robert Palisano, Lisa Chiarello, Sarah McCoy, Doreen Bartlett
Poster Presented at 5th International Conference of Cerebral Palsy (ICPC) Stockholm, Sweden in June 2016.
Doreen Bartlett, Barbara Galuppi, Robert Palisano, Sarah Westcott McCoy
Poster Presented at 5th International Conference of Cerebral Palsy (ICPC) Stockholm, Sweden in June 2016.
Sarah Westcott McCoy, Lisa Diller, Robert Palisano, Doreen Bartlett, Lisa Chiarello, Alyssa Fiss, Lynn Jeffries, Barbara Galuppi, Monica Smersh
Poster Presented at 5th International Conference of Cerebral Palsy (ICPC) Stockholm, Sweden in June 2016.
Characterization of Physical and Occupational Therapy Services for Children with Cerebral Palsy
Robert Palisano, Sarah Westcott McCoy, Doreen Bartlett, Lisa Chiarello
Poster Presented at IV Step Prevention, Prediction, Plasticity, and Participation, Ohio in July 2016
Alyssa Fiss, Lisa Chiarello, and Sally Westcott McCoy
Poster Presented at IV Step Prevention, Prediction, Plasticity, and Participation, Ohio in July 2016
Difficulties in Predicting Developmental Change: A Challenge for Service Providers
Doreen Bartlett, Lisa Chiarello
Poster Presented at IV Step Prevention, Prediction, Plasticity, and Participation, Ohio in July 2016
Lynn Jeffries, Alyssa Fiss, Doreen Bartlett, Sarah Westcott McCoy
Poster Presented at IV Step Prevention, Prediction, Plasticity, and Participation, Ohio in July 2016
Cheryl Kerfeld, Philip Hurvitz, Kristie Bjornson
Poster Presented at American Academy for Cerebral Palsy and Developmental Medicine (AACPDM), Florida in September 2016
Kristie Bjornson, Alyssa Fiss, Cheryl Kerfeld, Erin Wentz, Nancy Cicerello
Poster Presented at American Academy for Cerebral Palsy and Developmental Medicine (AACPDM), Florida in September 2016
Kristie Bjornson, Erin Wentz, Cheryl Kerfeld, Alyssa Fiss, Nancy Cicerello
Instructional Course presented at the American Physical Therapy Association Combined Sections Meeting (CSM), Texas in February 2017
Transforming Physical Therapy for Children with Movement Disorders
Sarah McCoy, Lisa Chiarello, Robert Palisano, Doreen Bartlett
Articles
Jeevanantham, Deepa MPT; Dyszuk, Emily MSc; Bartlett, Doreen PT, PhD. The Manual Ability Classification System: A Scoping Review. Pediatric Physical Therapy: Fall 2015 - Volume 27 - Issue 3 - p 236-241 (online)
Bartlett D, Galuppi B, Palisano R, McCoy S. Consensus classifications of gross motor, manual ability, and communication function classification systems between therapists and parents of children with cerebral palsy. Letter to the Editor. Developmental Medicine and Child Neurology, 2016; 58:98-99. (online)
Robert J. Palisano (2016) Bringing the Family's Voice to Research, Physical & Occupational Therapy In Pediatrics, 36:3, 229-231, (online)
Natalie V. Scime, Doreen J. Bartlett, Laura K. Brunton & Robert J. Palisano. (2017). Parents’ Experiences and Perceptions when Classifying their Children with Cerebral Palsy: Recommendations for Service Providers. Physical & Occupational Therapy In Pediatrics, 37:252-267. DOI: 10.1080/01942638.2016.1185505
Bartlett D, Chiarello LA, Hjorngaard T, Sieck Taylor B (2017). Moving from parent "consultant" to parent "collaborator": one pediatric research team's experience. Disabil Rehabil, 39(21):2228-2235. DOI: 10.1080/09638288.2016.1219402.
Alghamdi MS, Chiarello LA, Palisano RJ, McCoy SW (2017). Understanding participation of children with cerebral palsy in family and recreational activities. Research in Developmental Disabilities, 69:96-104. DOI: 10.1016/j.ridd.2017.07.006.
Bartlett D, Dyszuk E, Galuppi B, Gorter JW (2018). Interrelationships of Functional Status and Health Conditions in Children With Cerebral Palsy: A Descriptive Study. Pediatric Physical Therapy, 30:10-16. DOI: 10.1097/PEP.0000000000000469.
Sarah Westcott McCoy, Doreen Bartlett, Monica Smersh, Barbara Galuppi & Steven Hanna. Collaboration Group: On Track Study Team (March 2018). Monitoring development of children with cerebral palsy: the On Track study. Protocol of a longitudinal study of development and services. Available at: https://www.canchild.ca/en/resources/294-monitoring-development-of-children-with-cerebral-palsy-the-on-track-study-protocol-of-a-longitudinal-study-of-development-and-services.
Robert J Palisano, Lisa Avery, Jan Willem Gorter, Barbara Galuppi, Sarah Westcott McCoy (2018). Stability of the Gross Motor Function Classification System, Manual Ability Classification System, and Communication Function Classification System. Dev Med Child Neurol, 60(10):1026-1032. DOI: 10.1111/dmcn.13903.
Doreen J Bartlett, Sarah W McCoy, Lisa A Chiarello, Lisa Avery, Barbara Galuppi, On Track Study Team (2018). A Collaborative Approach to Decision Making Through Developmental Monitoring to Provide Individualized Services for Children With Cerebral Palsy. Physical Therapy, 98(10):865-875. DOI: 10.1093/ptj/pzy081.
Doreen J Bartlett, Jan Willem Gorter, Lynn M Jeffries, Lisa Avery, Steven E Hanna, On Track Study Team (2019). Longitudinal Trajectories and Reference Centiles for the Impact of Health Conditions on Daily Activities of Children with Cerebral Palsy. Developmental Medicine and Child Neurology, 61:469-476. DOI: 10.1111/dmcn.14080.
Fiss A, Jeffries LM, Bjornson K, Avery L, Hanna S, McCoy SW (2019). Developmental trajectories and reference percentiles for the 6-minute walk test for children with cerebral palsy. Pediatric Physical Therapy, 31, 51-59. DOI:10.1097/PEP.0000000000000552
LaForme Fiss A, McCoy SW, Bartlett D, Avery L, Hanna SE, On Track Study Team. Developmental Trajectories for the Early Clinical Assessment of Balance by Gross Motor Function System Level for children with cerebral palsy (2019). Physical Therapy, 99:217-228. DOI: 10.1093/ptj/pzy132.
Jeffries LM, Fiss AL, McCoy SW, Bartlett D, Avery L, Hanna S (2019). Developmental trajectories and reference percentiles for range of motion, endurance, and muscle strength of children with cerebral palsy. Physical Therapy, 99:329-338. DOI: 10.1093/ptj/pzy160.
Fiss AL, Jeffries L, Yocum A, Westcott McCoy S; On Track Study Team (2019). Validity of the Early Activity Scale for Endurance and the 6-Minute Walk Test for Children With Cerebral Palsy. Pediatr Phys Ther, 31(2):156-163. DOI: 10.1097/PEP.0000000000000577.
Bjornson K, Fiss A, Avery L, Wentz E, Kerfeld C, Cicirello N & Hanna SE. (2019). Longitudinal trajectories of physical activity and walking performance by gross motor function classification system level for children with cerebral palsy. Disabil Rehabil, 7:1-9. DOI: 10.1080/09638288.2018.1534995.
Alghamdi MS, Chiarello LA, Avery L, Palisano RJ (2019). Ease of Caregiving for Children: Re-Validation of Psychometric Properties of the Measure for Children with Cerebral Palsy up to 11 Years of Age. Dev Neurorehabil, 20:1-10. DOI: 10.1080/17518423.2019.1616844.
Alghamdi MS, Chiarello LA, Palisano RJ, McCoy SW, Orlin M, Abd-Elkafy EM (2019). Longitudinal Changes in Physical Caregiving for Parents of Children with Cerebral Palsy. Phys Occup Ther Pediatr, 10:1-13. DOI: 10.1080/01942638.2019.1637386.
Palisano RJ, Chiarello LA, Avery L, Hanna S; On Track Study Team (2019). Self-Care Trajectories and Reference Percentiles for Children with Cerebral Palsy. Phys Occup Ther Pediatr, 18:1-17. DOI: 10.1080/01942638.2019.1642288.
Westcott McCoy S, Palisano R, Avery L, Jeffries L, Laforme Fiss A, Chiarello L, Hanna S. Physical, occupational, and speech therapy for children with cerebral palsy. Developmental Medicine & Child Neurology (early online). First published: 28 July 2019. https://doi.org/10.1111/dmcn.14325.
Optimizing Collaborative Care: Student projects to learn about how best to share results with health care providers, children, parents and families
Alisiyah Daya worked under the supervision of Doreen Bartlett on a Deliberative Dialogue project. The research planning group included a CanChild scientist and physical therapist from Western University, MSc Students, a deliberative dialogue consultant, a parent of a young adult with cerebral palsy, a project coordinator, a physical therapist who is a professional practice leader, and a facilitator who has expertise in facilitating research evidence into clinical practice. A Deliberative Dialogue focuses on critical issues by bringing together research evidence and ‘stakeholders’ for a discussion to inform future actions and policy. The Dialogue discussion has representatives from many groups involved in or affected by decisions about the particular issue. The entire group learns from the different views and experiences at the table. This collaboration can uncover unique understandings of the issue and spark insights for solutions and considerations. The focus of our Deliberative Dialogue was on ways to encourage youth with CP, their families, their service providers, and associated administrators and policy makers in Ontario Association of Children’s Rehabilitation Services (OACRS) centres to use the research evidence from CanChild’s Ontario Motor Growth, ASQME, Move & PLAY and On Track studies in a family-centered way to support the goals of individual children with cerebral palsy and their families. Participants invited to be involved in the Deliberative Dialogue in November 2016 included parents of children with cerebral palsy, young adults with cerebral palsy, physical and occupational therapists and physicians all of whom work with children with cerebral palsy, representatives from the OACRS centres, representatives from the Ministry of Child and Youth Services, people with expertise related to services in rural areas. This preliminary summary was sent to participants after the meeting and follow up interviews were organized and transcribed from audio. The interview results were analyzed together with all Deliberative Dialogue information gathered throughout the process. Deliberative Dialogue Summary | Alisiyah Daya's Thesis
Tianna Deluzio worked under the supervision of Doreen Bartlett on a Knowledge Translation project. The goal of this project was to better understand how children with cerebral palsy (CP) and their families would like to receive development-related information, especially that obtained from the Move & PLAY and On Track studies. By interviewing children with CP and their parents or guardians, a focus was placed on determining the format they prefer to receive information as well as the way(s) they intend to use the information (e.g. for sharing with a child’s school). In addition, children were asked about their experiences with therapists and language used in different environments to help us understand how we can present the information in a way that is both comprehensive and respectful. Following recruitment with the help from a physiotherapist from the Thames Valley Children’s Centre, ten children were recruited to participate in in this project with their parent(s) or guardian(s). The first stage of data collection involved sending a pre-interview questionnaire to participants. This questionnaire consisted of five multiple-choice questions designed to gauge CP-related information preferences prior to the interview. Following these questionnaires, a semi-structured interview was conducted with each family to gain a more in-depth understanding of their information preferences and overall experiences related to receiving CP-related information. The interviews were semi-structured, aiming for the open-ended questions to lead to a detailed, participant-guided exploration of the topic rather than a preconceived interrogation by the interviewer. The interviews were transcribed and analyzed and the analysis, discussion, and conclusion were written up. This work also led to the creation of mock-ups of potential information formats, which were sent to participants to gain their feedback and his will inform the progress reports that will be available as part of the Results and Resources from the On Track Study. Information Preferences Summary | Tianna Deluzio's Thesis