I Want to Participate In...
The “I Want to Participate In…” series of Tip Sheets provide examples of a wide range of leisure activities and are designed for use by children and young adults.
Parent to Parent
Helpful tip sheets written by parents who have children with Cerebral Palsy for parents.
Participation and Environment Measure for Children and Youth (PEM-CY)
The Participation and Environment Measure for Children and Youth, or the PEM-CY, is a new measurement tool designed to help parents, service providers and researchers better understand the participation of children and youth, ages 5 to 17.
Participation 101: Tip Sheets
These Tip Sheets apply to children and youth of all abilities and were designed with input from parents, occupational therapists and representatives from community organizations to cover a variety of participation topics.
Children with Coordination Difficulties: A Flyer for Physical Educators
Some children have a great deal of difficulty learning to coordinate their movements and may appear awkward or clumsy. These children often struggle with participation in physical education class as well as in other subjects that involve handling objects, such as art, music or drama classes.
The Participation and Environment Measure for Children and Youth (PEM-CY): An innovative measure for home, school and community
The Participation and Environment Measure for Children and Youth, or the PEM-CY, is a new measurement tool designed to help parents, service providers and researchers better understand the participation of children and youth.
Family Life - Move & Play Study
This report focuses on what parents told us about their families at the 2nd session (a telephone interview). We asked about many different things, for example: family activities, the supports that families have in caring for their children, and the home environment.
Self-Care and Ease of Caregiving - Move & Play
This report highlights the information we gathered in the Move & Play study about children’s participation in self-care activities (such as eating, dressing, and bathing), and ease of caregiving for parents.
Additional Measures
Assistance to Participate Scale (APS), Child's Challenging Behavior Scale (CCBS), Canadian Occupational Performance Measure (COPM), Daily Activities of Infants Scale (DAIS), Health Promoting Activities Scale (HPAS), Spinal Alignment and Range of Motion Measure (SAROMM).
Developmental trajectories of youth with disabilities, ages 12 to 25 years
This project was initiated and funded by the Ministry for Child and Youth Services (MCYS) in Ontario. The results of our synthesis have been used for the ministry’s development of a Youth Policy Framework, named stepping stones.
PARTICIPATE STUDY: The Participation of Children with Disabilities
The PARTICIPATE study has been designed to examine the participation of children with physical disabilities in formal and informal everyday activities.
Health Conditions of Children With Cerebral Palsy (CP): Move & Play Study
This report focuses on what parents told us about the health conditions their children have, and how these conditions affected their daily lives. When we say “health”, we mean all the different functions of the whole body.
Assistance to Participate Scale (APS)
The APS is a brief, psychometrically sound instrument that measures the assistance that a school-aged child with a disability requires to participate in play and leisure activities at home or in the community, from the primary caregiver's perspective.
Encouraging Participation In Physical Activities For Children With Developmental Coordination Disorder
Parents of children with DCD are often confused and worried about their child’s lack of interest in physical activity. Parents, teachers and coaches may mistakenly label these children as lazy and unmotivated.
Child and youth participation in leisure activities: Does the environment make a difference?
In this Keeping Current, we explore the impact of the environment on the participation of children and youth who are living with a disability.
The International Classification of Functioning, Disability, and Health (ICF): A Global Model to Guide Clinical Thinking and Practice in Childhood Disability
The International Classification of Functioning, Disability and Health (ICF) (WHO, 2001) is a classification system developed by the World Health Organization that focuses on the 'components of health'.
Are Services Meeting the Health Needs of Children with Cerebral Palsy?
Cerebral palsy (CP), one of the most common physical disabilities in childhood, is often associated with co-occurring health conditions, which often have a great impact on children and families. As a result, children with CP require a wide variety of health services.
What helps adolescents with cerebral palsy to be physically active? Developing a program to support youth based on focus groups.
In this communication we want to share our study protocol as part of a program to support physical activity for youth with cerebral palsy (CP) using a focus group methodology.
FOCUS Webinars
The FOCUS (Focus on the Outcomes of Communication Under Six) is a measurement tool designed to evaluate participation-based outcomes in preschoolers with speech and language impairments. The following four webinar modules have been created in collaboration with the Ontario Ministry of Children, Community and Social Services' Preschool Speech and Language (PSL) Program. The modules describe the FOCUS, and explain how it can be effectively used in clinical practice and program-level evaluations.
How Parents View Their Child’s Participation and Environment: Creating a Foundation for the PEM-CY
This current In Brief includes more details about what we learned from parents about their child’s participation and the impact of the environment on participation.
The Child and Adolescent Scale of Environment (CASE)
The Child and Adolescent Scale of Environment (CASE) measures the perceived impact of problems experienced with physical, social and attitudinal environment features of the child’s home, school and community.
The Collaborative Process for Participation Goals
The Collaborative Process for Participation Goals was developed by Robert Palisano and Lisa Chiarello to provide a systematic but flexible process to guide families and therapists through the many considerations necessary to develop action plan.
Parent Needs and Strategies for Promoting Child Participation: What We Learned from Developing the Participation and Environment Measure for Children and Youth (PEM-CY)
This In Brief focuses on feedback from parents regarding the Participation and Environment Measure for Children and Youth (PEM-CY).
Conceptual Model of the Move and PLAY study
A conceptual model is a diagram that shows different factors that we think may have an effect on a variety of outcomes, such as motor abilities, self-care abilities, and participation in play.
Gross Motor Function Measure (GMFM) New, Shortened Versions - Move & Play
The Move & PLAY team developed a new, even shorter method of using the GMFM: the GMFM-66 B&C. It uses a “basal and ceiling” approach; child is assessed using items that range between the easiest and most difficult levels of his or her abilities; accurate scores can be obtained using as few as 15 items
The Impact of Environmental Setting on the Mobility of Children with Cerebral Palsy: Research Findings and Clinical Implications
Gross motor function of children with CP is highly variable. Children who are able to walk vary in their speed, endurance, and need for assistive devices.
Determinants of Life Quality in Children with Cerebral Palsy
This two-year study described quality of life and level of participation of children with cerebral palsy (CP).
Participation and Environment Project
The Participation and Environment Project is a collaboration between researchers in the United States and Canada.
Enhancing Fitness, Adaptive Motor Function, and Participation of Children with Cerebral Palsy Classified in Levels IV and V
This report will address adaptive motor function of children with cerebral palsy. Adaptive motor function enables performance of activities in daily life despite limitations in motor control of posture and movement.
Determining Physical Activity Levels and Cardiovascular Health in Adults with Cerebral Palsy (Stay-FIT 20-40 years study)
In the Stay-FIT pilot study, it was determined that the physical activity level of adolescents with CP (mean age 13.5 years) was lower than that of their healthy peers. However, the vessel health was not statistically different.
The Child and Adolescent Scale of Participation (CASP)
The Child and Adolescent Scale of Participation (CASP) measures the extent to which children participate in home, school, and community activities as reported by family caregivers.
An Evaluation of the Participation and Environment Measure for Children and Youth (PEM-CY)
This current In Brief includes more details about what we did to evaluate whether the PEM-CY provides consistent information about participation and actually measures what we want it to measure.
The International Classification of Functioning, Disability, and Health (ICF): There is Always More Than a Single Story*
The ICF helps clinicians and families think about a broader and fuller picture of both the specific health information and the life situation of a patient.
FOCUS
Focus on the Outcomes of Communication Under Six (FOCUS © ) is a clinical tool designed to evaluate change in communicative-participation in preschool children. ‘Communicative participation’ is the child’s communication and interaction in “real world” situations at home, school, or in the community
Recreation and Rehabilitation Services - Move & Play
This report focuses on what parents told us about the recreation and rehabilitation services their children received. We collected information about various aspects of these services at the 2nd session, using a parent questionnaire developed by the research team.
Move & Play Executive Summary
The purpose of the Move & PLAY study was to gain a better understanding of the child, family, and service delivery factors that support the development of movement abilities and participation in self-care, recreation, and play of preschool children with cerebral palsy (CP).
Do You Know A Child Who Is Clumsy? A flyer for coaches and sports instructors
Do you know a child who is motivated to participate in sports activities at first, but they experience significant frustration when they just can’t seem to “get the hang of it”?
Young Children's Participation and Environment Measure (YCPEM)
The YC-PEM is designed to help parents, service providers and researchers better understand the participation of young children with and without disabilities ages 0 to 5 years.
Motor and Self-Care Abilities - Move & Play
There are 2 summaries in this series describing the results of the main goal of the Move & PLAY study: to determine which child, family, and service factors influence children’s motor, self-care, and play abilities.
Measures of Children's Participation and Enjoyment: CAPE & PAC
The Children's Assessment of Participation and Enjoyment (CAPE) and the Preferences for Activities of Children (PAC) are two companion measures of children's participation.
The Child and Adolescent Factors Inventory (CAFI)
The Child and Adolescent Factors Inventory (CAFI) is an inventory of problems in physical, cognitive and psychosocial functioning and other symptoms encountered by children with acquired brain injuries as well as other childhood disabilities.
Development and Testing of a Resource Manual for Parents of Young Adults Who Receive Individualized Funding for Support
The goal of this project is to develop a Resource Manual that can be broadly circulated to families who receive individualized funding.
Patterns and Predictors of Recreational and Leisure Participation for Children with Physical Disabilities
For children and youth, involvement in life situations includes participation in recreational and leisure activities as well as school and work activities.